Donor Knowledge of Provided Information - A Prospective Nationwide Inventory Study

K. Kortram, E.Q.W. Spoon, S.Y. Ismail, D. Nieboer, F.C.H. d' Ancona, M.H.L. Christiaans, R.E. Dam, H.S. Hofker, A.W.J. Hoskbergen, K.A.M.I. van der Pant, R.J. Toorop, J. van de Wetering, J.N.M. IJzermans, F.J.M.F. Dor

Thursday 15 march 2018

17:05 - 17:15h at Van Rijck/Ruys Zaal

Categories: Coördinatiesessie, Session (parallel)

Parallel session: Parallel session 10: Transplant coordination

Aim

To assess the current procedures regarding informed consent for live donor nephrectomy, donor knowledge of the donation procedure and postoperative course, and their satisfaction with the informed consent procedure.

Methods

Donor knowledge of the procedure and postoperative course was prospectively evaluated by means of pop quizzes in a multicenter national study. All potential donors who were seen for the first time at the transplant nephrology outpatient clinic (Cohort A) completed a pop-quiz about the details of the donation procedure, prior to receiving any information. A second group of donors completed the same pop-quiz on the day of admission for donor nephrectomy (Cohort B). The primary endpoint was donor knowledge. Secondary endpoints were donor satisfaction, and current informed consent practices in the different centers.

Results

A total of 604 pop-quizzes were completed; 378 in Cohort A and 226 in Cohort B. Average donor score was 6.9 out of 25 (±3.9, range 0-18) in Cohort A and 10.4 (±2.8, range 0-17.5) in Cohort B. Donors generally scored best on duration of admission and convalescence, and worst on long-term complications. Younger donors, donors with a higher educational level and those who were registered as deceased donors scored higher in Cohort A, only donors who were registered as deceased donors scored higher in Cohort B. Donors felt relatively well prepared for surgery after receiving all information: 8.3 (±1.3) out of 10, and average postoperative satisfaction with the informed consent procedure was 8.1 out of 10 (±1.6, range 0.6-10)).

Conclusion

Donor knowledge of the procedure and postoperative course improves during the informed consent process but is still low. Long-term complications deserve more attention during the preoperative educational process of living kidney donors. Incentives to standardize the informed consent procedure will further improve donor knowledge and satisfaction, and will benefit consult efficiency at the outpatient clinic.